1. Information on the processing of your personal data
Processing of personal data: This survey is conducted completely anonymously; we do not collect any personal data. For research purposes, we collect data on your health and sociodemographic information. These are treated with strict confidentiality and stored without the email address or other personal details. There is no assignment to personal identity and no assignment list is maintained. Optionally, at the end of the questionnaire, you have the opportunity to agree to be contacted for a follow-up study a year later. Participation in this subsequent survey is also entirely voluntary. The contact for the second survey is made using a separately stored email address and an individual code (see next section) - these data are then sensitive in terms of Art. 9 Paragraph 1 DSGVO. The email address will be deleted after completion of the follow-up study. However, the details of age, gender, and function may still allow for re-identification potential. The risk of personal identification can be further reduced by choosing a non-personally identifiable email address.
Technical-Organizational Measures/Standard and Data Processing: The survey is conducted online using SoSci Survey. This is an online questionnaire software that exclusively transmits SSL-encrypted data and operates in compliance with DSGVO and BDSG. No additional data such as location or IP address are collected, except for the access time. Please ensure sufficient power supply, as otherwise data processing cannot be guaranteed to be seamless. Your consent is electronically stored (on the survey server in Munich) when you tick "Yes". The data are labeled with a code independent of personal identity. Forwarding to further recipients via the platform is not possible. The privacy information of SoSci Survey can be viewed at the following link: https://www.soscisurvey.de/en/data-protection. The email address identifying you for the optional follow-up survey is stored separately from all other data and cannot be assigned. The code can only be used to link the questionnaire of the first survey with the questionnaire of the second survey, but not with the e-mail address.
Responsibility: Responsible for data processing is:
Head of the Clinical Trial:
Name: Prof. Dr. Alexander Schmidt & Prof. Dr. Jens Plag
Address: Berliner Centrum für Musikermedizin (BCCM), Klinik für Audiologie und Phoniatrie
Phone: +49 30 450 555 402
Email: musikermedizin@charite.de
Publication: We intend to publish the results of the study in a form that does not allow for any conclusions about your identity. The results of the study will be shared in accordance with confidentiality obligations as group results and not individually. The project staff is bound to confidentiality. Data protection is fully guaranteed.
Storage/Deletion: According to the rules of good scientific practice, we are obliged to provide evidence for a period of 10 years that the published data are based on original data. For this purpose, we will continue to store the data. Once the retention period has expired, we will delete the code you generated for the follow-up study. Please note that due to the anonymization, no withdrawal of consent, information, correction, or deletion/blocking is possible, as we cannot associate the data with your person.
2. Cancelling and pausing the survey and contact options
Cancelling and pausing of the Survey: You can cancel or pause the survey at any time and without providing reasons. This does not entail any disadvantages for you.
Contact Options: If you have any questions, please contact the responsible data processing authority:
Study heads:
Names: Prof. Dr. Alexander Schmidt & Prof. Dr. Jens Plag
Address: Berliner Centrum für Musikermedizin (BCCM), Klinik für Audiologie und Phoniatrie
Phone: +49 30 450 555 402
Email: musikermedizin@charite.de
For concerns about data processing and compliance with data protection requirements, you can also contact the Data Protection Office of Charité – Universitätsmedizin Berlin: Data Protection Office of Charité – Universitätsmedizin Berlin, Charitéplatz 1, 10117 Berlin; Phone: +49 30 450 580016; Email: datenschutz@charite.de.
In the case that you consider the data processing to be unlawful, you have the option to file a complaint with the supervisory authority responsible for Charité - Universitätsmedizin Berlin: Berlin Berliner Beauftragte für Datenschutz und Informationsfreiheit, Alt-Moabit 59-61, 10555 Berlin, Phone: +49 30 138890, Fax: +49 30 2155050.
A copy of the information and the consent form can be obtained at any time via email at musikermedizin@charite.de.